“But let patience have her perfect work, that ye may be
perfect and entire, wanting nothing.” James 1:4
What Does It Mean to Truly Rely on Others?
When I first had my G-tube placed, I had no idea how
dependent I would be. In the hospital, the nurses handled everything for
me—adding the extension, holding the syringe, pouring the formula, even
administering crushed and diluted medications through the tube. It all happened
without me having to lift a finger, because at that time... I couldn’t.
The feedings were simple in schedule—just three meals a
day—but physically and emotionally, it was anything but simple. I was weak,
healing, and overwhelmed. I didn’t have the strength, coordination, or
understanding to participate in my own care. I just had to be still, let
someone else take over, and trust the process.
The Transition Home: More Calories, More Challenges
Once I returned home, my schedule changed drastically. I was
in physical, occupational, and speech therapy three days a week, three hours at
a time. That much movement increased my need for calories—and fast. I couldn’t
survive on three small feedings a day. I needed five, sometimes six, just to
keep up.
But each of those meals still had to be administered by
someone else.
It’s one thing to be dependent in a hospital setting, where
care is expected. It’s another thing entirely to feel helpless in your own
home, having to ask someone every few hours, “Can you feed me?” Or, “Can you
crush this medicine for me?”
That stage of life required humility, patience, and a whole
lot of grace—not just from God, but from those around me, too.
Gradual Progress: A Milestone in My Hand
The first real sign of independence didn’t look like much to
most people—but to me, it was a miracle.
I could hold my own syringe.
My hand didn’t wobble as much. I could brace my arm just
enough to steady the extension. Someone else still had to pour the liquid, but
the act of me holding it—of physically participating in my feeding—was
monumental.
It was a moment where I felt my body obeying again, just a
little.
“Despise not the day of small things,” the Scripture
says in Zechariah 4:10. And I didn’t. I celebrated it.
Learning to Pour, Bit by Bit
From there, I graduated to pouring small amounts of formula
myself. I couldn’t do it from any container—I needed wide, short ones where I
had a steady grip. My dexterity was still weak. But I was pouring. I was
contributing.
Each stage wasn’t just physical progress—it was spiritual, too. Every new step was a reminder that healing doesn't always come all at once. Sometimes, it’s gradual. Sometimes, it’s slow. But always, it’s in God’s time.
“Faithful is he that calleth you, who also will do it.” 1 Thessalonians 5:24
“He giveth power to the faint; and to them that have no might he
increaseth strength.” Isaiah 40:29
Growing Capable: From Partial to Full Independence
“I can do all things through Christ which strengtheneth
me.” Philippians 4:13
After those small, early milestones, I gradually began doing
some of my feedings completely on my own—not all of them, but just one
or two a day to start. It was a matter of endurance and timing. Some parts of
the day I had more energy and stability, so I’d feed myself during those
windows. Other times, I still needed help.
But that’s how growth works—it’s not always linear.
Sometimes progress feels slow, even invisible, but it’s still happening.
Practice, Therapy, and Confidence
Through continued therapy and intentional practice, my
coordination steadily improved. Little by little, my hands stopped
trembling as much. My arms grew stronger. The movements became smoother. I was
building not just muscle, but confidence.
Now, I’m able to prepare my tube feedings entirely on my
own. I gather the syringe and extension set, which locks securely into
my G-tube—just a small, button-like piece that protrudes slightly from my
stomach. It’s what’s known as a Mickey button, and though it’s a
permanent part of my body, it’s also become something I’ve grown quite
comfortable managing.
Creating My Setup: Simple, but Mine
I’ve also developed my own little system—a setup that works
for me. I lay a hand towel across my lap like a large napkin, just in
case of spills, which still happen from time to time. Feeding myself isn’t
always clean or perfect, but it’s mine.
That towel isn’t just fabric—it’s part of my independence.
It represents my readiness. My ability. My ownership of this process.
“For thou hast girded me with strength unto the battle:
thou hast subdued under me those that rose up against me.” Psalm 18:39
From Synthetic to Whole: Rethinking My Nutrition
Over the years, what goes into my body has also evolved. I
used to rely strictly on hospital-supplied formula—calorie-dense, shelf-stable,
but not very wholesome.
Eventually, I began using over-the-counter protein shakes
and powders, tweaking my nutrition to better fit my needs. Now, I use a
combination of those protein supplements and real food blend pouches for my main meals.
These are made of pureed, whole foods—balanced and easier on my stomach. They
also give me a greater sense of eating something real, even if it
doesn’t pass through my mouth.
I’m currently back to three meals a day, carefully
calculated to meet my body’s needs. On days I go to the gym, I try to reach up
to 2,500 calories. My baseline goal is at least one gram of protein
per pound of body weight, because I know that protein builds strength
and keeps me full.
There’s a strategy to all of this, and it’s one I’ve learned
through time, prayer, and discipline.
The Gift of Feeding Myself
I no longer have to wait on someone else’s schedule.
I don’t have to feel guilty for asking for help or worry about whether someone
is available. I can respond to my body’s needs when I feel hungry. And
yes—I do feel hunger and fullness, just like anyone else. Occasionally,
I’ll burp and taste the food I’ve put into my tube. That may sound strange to
some, but to me, it’s a reminder that my body is still connected to the act of
nourishment.
This autonomy is one of the greatest gifts God has given me in recent years. Not just the ability to feed myself, but the freedom to do so confidently.
“The Lord is my strength and song, and is become my
salvation.” Psalm 118:14
“And let us not be weary in well doing: for in due season we shall reap, if
we faint not.” Galatians 6:9
Freedom to Come and Go
Being able to completely manage my tube feedings now is a tremendous
blessing. It gives me freedom—not just the ability to eat when I’m hungry,
but the independence to come and go as I please.
Whether I’m at home, visiting a friend, out for a day trip,
or even on an extended trip for several days or weeks, I can take care of my
feedings without help. I don’t have to structure my life around someone
else’s availability. That kind of independence is something I once only dreamed
of, and now it’s part of my daily life. And I thank God for that.
A Lighthearted Spirit
One more thing I want to say—because it matters. I’m not
sensitive or easily offended when it comes to talking about my G-tube. In fact,
I’m very open about it, and I even joke about it myself sometimes. So if
someone else cracks a joke or brings it up, that’s fine with me. It doesn’t
upset me or make me feel ashamed. It’s just part of my life, and I’d rather
laugh about it than let it weigh me down.
“A merry heart doeth good like a medicine: but a broken
spirit drieth the bones.” Proverbs 17:22
This tube doesn’t define me—but it has certainly helped
shape me into a stronger, more patient, and more joyful version of myself.
One Step at a Time
They say Rome wasn’t built in a day, and I try to
keep that in front of me when progress feels slow. Every new movement, every
time I pour without spilling, every feeding I do myself—each one is a brick
in the foundation of my healing. I'm not where I used to be, and that alone
is reason to give God praise.
Sometimes we rush toward the end goal, forgetting that the
journey is what shapes us. But I’ve learned through this process that the small
victories are sacred, and the daily steps are holy ground.
“Being confident of this very thing, that he which hath
begun a good work in you will perform it until the day of Jesus Christ.” Philippians
1:6
“The steps of a good man are ordered by the Lord: and he delighteth in his
way.” Psalm 37:23
Final Thought
If you’re walking through your own slow journey—whether it’s
with a feeding tube, chronic illness, or just the process of learning to do
life differently—know this: progress isn’t always loud, and healing
doesn’t always look like it used to. But every step counts. And every
step brings you closer to strength, stability, and the peace God has for you.
Up Next…
I often get asked, “What do you do at night? Do you have
to spit your saliva while sleeping?”
That’s a great question—and I’ll be addressing it in an upcoming post. So stay
tuned!
Be encouraged. 🧡 🎵Hold On