Understanding More of the Puzzle
John 8:32 "And ye shall know the truth, and
the truth shall make you free."
I don't mean to always be talking about my medical
appointments, but that is my current situation, and I want to let people know
how it's going so you can weigh in and let me know if this seems like a good
direction.
Recently, I visited an ear, nose, and throat doctor (ENT)
because of a recommendation that followed my swallow study. I had actually seen
this same doctor at least twelve years ago for these issues. At that time, he
performed several esophageal dilations using a gauge and also injected Botox
into the muscle that should paralyze it (relax) to open to allow swallowing.
When I scheduled this recent appointment, I wasn't entirely
sure what the purpose would be. Nothing had changed, and those previous
procedures did not produce any noticeable results. However, I am very glad I
went.
The doctor remembered me and my situation, and many of my
questions were finally answered. I was able to talk through several concerns
and gain a better understanding of what is actually happening. As someone
who likes to be informed, that was valuable in itself.
Working with Speech Therapy and Understanding the
Swallowing Process
Proverbs 4:7 "Wisdom is the principal thing;
therefore get wisdom: and with all thy getting get understanding."
I explained that I am currently working with a speech
therapist and that I recently completed another swallow study. We
discussed the exercises I am doing and what they are intended to accomplish.
One thing he explained is that these exercises are not about
strengthening the muscles in my throat the way someone would strengthen a bicep
in the gym. The muscles involved in swallowing do not increase in mass through
exercise like other muscles.
Instead, the exercises are helping coordination and
reflexes.
My upper esophageal sphincter (UES) is an involuntary
muscle. I cannot consciously command it to open or close. Because my brain
injury affected coordination and reflexes, the exercises are designed to
improve timing and communication between the brain and the swallowing muscles.
The doctor compared swallowing to throwing a curveball.
A pitcher must coordinate numerous muscles with precise timing. If one movement
happens too early or too late, the ball will not spin correctly. Swallowing
works much the same way. One event must occur at exactly the right time before
the next event can happen.
That explanation made a great deal of sense to me.
He also explained that a swallow study does not show the
entire esophagus. We know that the esophagus works through coordinated
contractions that move food toward the stomach. He suspects that the
coordination of that process may also have been affected by my brain injury.
Neurological Factors: Nerves, Spasticity, and Ataxia
2 Timothy 1:7 "For God hath not given us the
spirit of fear; but of power, and of love, and of a sound mind."
Ultimately, the doctor helped me understand that my
swallowing difficulties are primarily neurological.
While muscles are involved, muscles rely on nerves to
tell them when to contract and when to relax. If the nerve signals are
disrupted, the muscles cannot function as intended.
This made me think about something my chiropractor has often
mentioned: my muscles are extremely tight. I have muscle spasticity, which
is abnormal muscle tightness. It stands to reason that this would affect
internal muscles as well as the ones I can see.
I also have ataxia, which affects coordination. One
example is that walking and talking at the same time can be surprisingly
difficult. When I try to do both simultaneously, my walking often suffers
because my brain is trying to process multiple tasks at once.
Understanding these challenges does not eliminate them, but
it does help me better understand what my therapy is trying to accomplish.
Exploring a New Procedure
Proverbs 22:3 "The prudent man foreseeth the
evil, and hideth himself: but the simple pass on, and are punished."
The doctor also discussed a newer procedure that has become
more common over the past few years.
Rather than using a traditional gauge dilation for the
entire esophagus, this method uses a specialized balloon. Because the upper
portion of the esophagus is more oval-shaped than round, a
double-balloon system can better fit that shape.
When inflated, the balloons stretch the area and may break
some of the muscle fibers that contribute to the tightness.
Neither of us knows whether this procedure will help.
However, we agreed that sometimes you do not know unless you try.
So I am going to schedule the procedure.
If it helps, wonderful. If it does not, then at least we
will have explored another option and gained more information.
Brain Pathways, Learning, and Recovery
Romans 12:2 "Be not conformed to this world:
but be ye transformed by the renewing of your mind."
People often say that you cannot teach an old dog new
tricks, but that is not entirely true.
A child's brain may learn faster than mine does today, but
the brain retains an amazing ability to adapt and learn throughout life.
The goal of many of these exercises is to help establish
new neurological pathways. Through repetition, practice, and consistency,
the brain can learn alternative routes for accomplishing tasks.
That process takes time.
It takes patience.
And it takes persistence.
But it is possible.
Finding Peace in What I Cannot Control
Proverbs 3:5 "Trust in the LORD with all
thine heart; and lean not unto thine own understanding."
There is something strangely comforting in knowing that
my UES is an involuntary muscle.
I cannot simply decide to open it through willpower any more
than I can consciously control my heartbeat. For years, I think part of me
carried the burden of feeling as though I should somehow be able to make it
work if I just tried hard enough.
What brings me peace is not that I have stopped trying.
It is that I finally understand the issue better.
For years, swallowing felt like a mystery. I knew what was
not working, but I did not fully understand why. Now I have a clearer
picture of how my brain injury, coordination, reflexes, and muscle function all
fit together.
At times, I found myself looking at teaching hospitals and
specialty programs, wondering if there might be someone else who could provide
the explanations I was missing. I wasn't necessarily searching for a miracle
cure as much as I was searching for understanding.
What surprised me was that many of the answers I had been
seeking were provided during this appointment with my ENT. He took the time to
explain what was happening, why the therapies were being recommended, and how
the neurological aspects of my injury continue to affect swallowing. For the
first time in a long while, I felt like I had a clearer picture of the
situation.
Learning more about the neurological side of swallowing has
changed my perspective.
My responsibility is not to directly control the UES. My
responsibility is to faithfully do the work that may help my brain build
stronger pathways, improve coordination, and develop better communication with
the muscles involved in swallowing.
That distinction brings tremendous relief.
The outcome is not entirely in my hands, but the effort is.
I can show up to therapy.
I can practice the exercises.
I can remain consistent.
And then I can trust God with the parts that are beyond my
control.
Understanding more of the puzzle has not removed the
challenge, but it has replaced confusion with clarity. And sometimes clarity is
a gift in itself.
The Blind Man and Simple Obedience
John 9:7 "He
went his way therefore, and washed, and came seeing."
As I reflected on all of this, my mind went to the blind man
in John chapter 9.
The man had no control over his blindness. He could not
repair his eyes. He could not create his own healing.
Jesus placed clay upon his eyes and told him to wash in the
pool of Siloam.
The instruction may have seemed simple. It may even have
seemed insignificant.
Yet the man obeyed.
He did what was within his power to do and trusted God
with what was beyond his ability.
That speaks deeply to me.
My exercises may not seem dramatic. They may appear
repetitive and small. Yet my responsibility is not to control the outcome. My
responsibility is to faithfully do what has been placed before me.
Confidence is not believing that I can fix everything.
Confidence is trusting God while faithfully doing the
next thing He has given me to do.
Laying Down the Weight
1 Peter 5:7 "Casting all your care upon him;
for he careth for you."
For a long time, I think I carried a weight that
never truly belonged to me.
Somewhere in the back of my mind was the belief that there
had to be something more I should be doing—some hidden answer I needed to
discover, some missing piece I was responsible for finding.
I kept feeling as though there must be another solution,
another effort, another strategy waiting just around the corner.
But lately, I am beginning to see something different.
Not every burden is mine to carry.
Not every problem is mine to solve.
Not every outcome is mine to control.
There may not be another layer to uncover.
There may not be another weight to pick up.
Perhaps my responsibility is simply to be faithful with what
I know today, continue doing the work in front of me, and trust God with the
parts that belong to Him.
For once, that realization feels less like surrender and
more like freedom.
Not more striving.
Not more pressure.
Not more weight.
Just peace.
And after many years of searching for answers, that peace
feels like a gift from God.
Personal Training
One exciting development in my recovery journey is that I
recently completed my first session with a personal trainer. After years of
learning how to compensate for injuries and adapt to physical limitations, I
am now beginning the process of refining some of those habits.
Many of the movements and patterns I developed over the
years were necessary. They helped me regain independence and keep moving
forward. But now, with guidance and intentional training, I have an
opportunity to improve the quality of those movements.
One of my primary goals is to improve my gait, or walking
posture. That means slowing down my walking, engaging my core, and being more
conscious about bending my right leg, which remains my weaker side. For years,
my brain has naturally encouraged me to protect that side and place more trust
in my stronger leg. The challenge now is teaching my brain that my right leg
can do more than it thinks.
Recovery is often as much neurological as it is physical. My
body must learn to trust itself again. By slowing down and allowing proper
movement patterns to develop, I hope to engage muscles that have been underused
and improve my balance, stability, and confidence.
I'm excited to see what unfolds in the coming months. Every
step may be slower, but each step is also more intentional. Sometimes
progress isn't about moving faster; it's about moving better.
Continuing to Learn
Philippians 3:14 "I press toward the mark for
the prize of the high calling of God in Christ Jesus."
If there is one thing I have learned through this journey,
it is that recovery is rarely a straight line. Sometimes progress comes
through answers. Sometimes it comes through therapy. Sometimes it comes through
trying a new procedure. And sometimes it comes through learning a better way to
do something I have been doing for years.
For a long time, I viewed recovery as reaching a
destination. Now I am beginning to see it more as a process of continual
learning. Each appointment, each exercise, each conversation, and each new
challenge reveals another piece of the puzzle.
I do not know what the future holds. I do not know whether
the upcoming procedure will help. I do not know how much improvement may come
from speech therapy or personal training. But I do know this: God has been
faithful through every stage of this journey, and He has never stopped teaching
me.
Today, I understand a little more than I did yesterday. I
have a little more direction than I had before. And I have renewed hope that
growth is still possible.
So I will keep doing the next thing.
I will keep showing up to therapy.
I will keep practicing the exercises.
I will keep taking intentional steps.
And I will keep trusting God with the results.
After all these years, I am still learning, still growing, and still discovering that God's work in my life is not finished yet.
Be encouraged. 🧡













