Before I get into all of that, I have to say that this has been a particularly trying week—not necessarily because of one specific thing, but just life in general. We all have those weeks when things seem to pile up, when our minds are full, and when we are trying to keep up with everything happening around us. I certainly have had one of those weeks.
Sometimes, in the middle of trying to manage all the things
life brings our way, a conversation or a new piece of information comes along
that makes us stop and think. That is what happened recently, and I wanted to
share it because it may shed some light on a few things I have been trying to
understand about my own recovery.
As many of you know, my journey since the motorcycle accident in 2009 has involved a tremendous amount of rehabilitation, physical challenges, and learning to live with the changes that followed. Recovery has never been a straight line. There have been milestones worth celebrating, difficult days that required patience, and seasons when I have had to learn to approach familiar challenges in new ways.
Even after all these years, I am still looking for ways to
improve my movement, coordination, swallowing, and overall quality of life. I
believe there is value in continuing to learn about my body and asking
questions when something doesn't seem to have a clear explanation.
This past week, I had a session with a massage therapist I
have been seeing for the past few months. Our work has focused on addressing
some of the physical issues I continue to experience from the accident, helping
me work toward smoother movement and responses, and supporting the different
goals I have established for my recovery.
During this particular session, our conversation took an
interesting turn. Something she shared with me introduced a possibility I had
never heard of or even considered before.
That possibility involved the vagus nerve.
A Conversation That Introduced a New Possibility
I have recently received an EOE diagnosis, which
stands for eosinophilic esophagitis. This is a condition in which
certain white blood cells, called eosinophils, build up in the esophagus and
cause inflammation. I have also been dealing with other medical concerns, and
together these findings have given me more to investigate.
Most importantly, I have been trying to understand what
these findings might mean in relation to the swallowing difficulties I have
experienced since my accident.
My swallowing problems have been especially challenging
because they have persisted for so many years. Recent evaluations have
continued to raise questions about the coordination and function involved in
swallowing. My upper esophageal sphincter (UES), the muscle that
helps control the passage of food and liquid from the throat into the
esophagus, has not been opening as it should.
The medical professionals I have consulted have discussed
the possibility of a neurological component to these difficulties.
Given the nature of the injuries I sustained in my accident,
that is certainly an avenue worth investigating. My recovery involved
significant neurological challenges, and even now, there are things about the
way my body responds and functions that I am still trying to understand.
One of the reasons the conversation with my massage
therapist caught my attention was learning that the vagus nerve originates
in the brainstem, an area that has been part of my own medical history. It
travels through the neck and into the chest and abdomen, connecting with
several systems involved in important bodily functions, including swallowing
and digestion.
Could there be a connection worth investigating? Could some
of the difficulties I experience be related to how these neurological pathways
communicate with the muscles and organs involved?
I don't have those answers. But I find myself asking
different questions now, and sometimes that is where the next step in
understanding begins.
There is something interesting about living with a condition
for so many years and still discovering things you have never considered. You
would think that after all the appointments, evaluations, procedures, and
conversations with medical professionals, I would have exhausted the
possibilities of what might be contributing to my difficulties. Yet here I
am, seventeen years later, learning about a nerve that plays a role in several
of the very functions I struggle with.
What caught my attention wasn't simply learning about
another nerve in the body. It was realizing how closely its responsibilities
relate to the areas where I continue to experience difficulties. It made me
wonder how many pieces of the puzzle might still be unexplored.
What Is the Vagus Nerve?
The vagus nerve is one of the major nerves involved in
communication between the brain and the body. It begins in the brainstem,
passes through the neck, and extends into the chest and abdomen, sending
branches to several important organs.
Think about how many things our bodies do without us having
to consciously tell them to happen. Our heart beats, our digestive system
processes food, and our bodies continually communicate information between
organs and the brain. We don't have to stop and think about every individual
process.
The vagus nerve is one of the important pathways involved in
that communication. It carries information in both directions, from the brain
to the body and from the body back to the brain.
It plays a significant role in the parasympathetic
nervous system, which helps regulate many of the body's automatic
functions, including aspects of heart rate and digestion.
What particularly interested me was its involvement in
swallowing and the muscles of the throat and larynx. Branches of the vagus
nerve help coordinate movements needed for swallowing, voice production, and
airway protection.
These are areas that have been part of my ongoing
challenges.
Learning about these responsibilities made me pause. Here
is a nerve that connects the brainstem with so many systems throughout the
body, including areas that are directly relevant to some of the challenges I
have been trying to understand, yet I had never heard it previously mentioned
in relation to my situation.
It is fascinating to consider how something we rarely think
about can have such an important role in everyday functions.
Could the vagus nerve be part of the picture in my
situation?
I do not know. That is a question for further investigation,
not a conclusion I can draw from reading about the nerve's functions.
Nevertheless, I find it encouraging to learn more about the systems involved.
Could the Nervous System Be Playing a Role?
Another part of our conversation concerned the body's
response to stress and trauma.
Our nervous system helps us respond to danger. When we
encounter a perceived threat, the body can activate what we commonly call the fight-or-flight
response. This prepares the body to respond to a situation that it
perceives as threatening.
But our bodies also have systems that help regulate us when
that immediate response is no longer necessary. The parasympathetic nervous
system plays an important role in allowing the body to rest, recover, and carry
out functions such as digestion. The vagus nerve is a major part of this
system.
What my massage therapist brought to my attention was the
possibility that the nervous system's regulation of certain functions might be
relevant to my situation.
She wondered whether the area involved in digestion and the
esophagus could be responding in a way that affects muscle function. The
possibility she raised was that some aspect of the body's protective response
might be contributing to the difficulties I experience.
It was an interesting thought, especially because I have
spent so much time trying to understand why my upper esophageal sphincter does
not open properly.
I found myself thinking about how the body responds to
trauma and how complicated those responses can be. While there is no
evidence yet that my swallowing difficulties are caused by a prolonged
protective response, the relationship between neurological function and
swallowing is something I want to understand better.
There is an important distinction here. The vagus nerve is
involved in swallowing and digestive function, but that does not establish that
my esophagus is clamping down because my body is stuck in a protective state.
Nor does it mean that relaxation techniques can correct a problem caused by
nerve injury or impaired muscle coordination.
My swallowing difficulties could involve several factors,
including neurological dysfunction, muscle coordination, and the inflammation
associated with my esophageal condition. Determining how those factors relate
to one another requires medical evaluation.
Still, I believe there is value in this newly suggested
possibility.
If the nervous system is contributing to my difficulties, I
want to understand how. If another explanation is more likely, I want to
understand that, too.
My goal is not to settle on an explanation simply because it
sounds promising. My goal is to keep learning and make informed decisions about
my care.
Humming, Singing, and Deep Breathing
Another part of our conversation involved simple activities
that may influence how the body responds to stress.
My active participation would include humming, singing, and
deep breathing as things worth considering. These activities are often
discussed in connection with relaxation and nervous system regulation. Slow,
controlled breathing can help some people feel calmer, while humming and
singing involve coordination of breathing, the vocal cords, and muscles in the
throat and larynx.
The idea interested me for several reasons.
Interestingly, singing and breathing are things we often
take for granted. We don't typically think about all the coordination involved
in producing a sound, controlling our breath, or moving the muscles that allow
us to speak or sing.
Yet these activities involve several of the same general
structures that have been part of my swallowing challenges.
I began thinking about how these activities might fit into
the other exercises I am already doing. I have been working on specific
swallowing exercises and techniques recommended by my speech therapist, and I
am always interested in learning whether there are other appropriate ways to
support that work.
Breathing exercises are already familiar to me as part of
the work I do to improve my physical function. The possibility of incorporating
humming or singing into an appropriate routine gave me something new to
consider.
Of course, there is a difference between an activity that
promotes relaxation and one that directly improves a neurological swallowing
disorder. I don't know whether these suggestions will make a difference in my
particular situation, but they are things I intend to employ- it can’t hurt to
try.
Sometimes the simplest suggestions lead us to investigate
things we might otherwise have overlooked.
Continuing to Search for Answers
One thing I have learned throughout this journey is that the
absence of an immediate answer does not mean there is nothing left to learn.
I have lived with these swallowing difficulties for many
years. I have undergone evaluations and treatments, and I continue to work
toward understanding what is happening in my body.
My recent appointments have brought new information,
including my EOE diagnosis and continued concerns about the function of my
upper esophageal sphincter. Each finding needs to be considered carefully.
Eosinophilic esophagitis can cause inflammation and other esophageal problems,
but it does not automatically explain every swallowing difficulty. Likewise,
identifying a possible neurological component does not tell us precisely which
nerve pathways or muscles may be involved.
There is still much to understand.
I am grateful for the professionals who take the time to
listen, explain, and help me explore appropriate options. I am also learning to
appreciate the value of asking questions outside the narrow boundaries of what
I already know.
That does not mean accepting every theory as fact. It means
remaining open to reasonable possibilities while allowing evidence and
qualified medical guidance to help determine what deserves further attention.
For me, that is an important part of advocating for my own
health.
I want to keep learning. I want to keep asking questions. And
I want to keep looking for ways to improve, even when progress takes longer
than I would like.
Sometimes the Next Answer Begins With a New Question
There have been many times throughout my recovery when I
thought I understood something, only to discover there was another layer I
hadn't considered. Sometimes the information comes from a medical appointment.
Sometimes it comes from a conversation with someone who sees something from a
different perspective. And sometimes it comes from simply taking the time to
research and learn.
I have learned that advocating for my health means being
willing to ask questions, even when I don't know where those questions might
lead.
I also recognize that not every possibility will turn into
an answer, and not every suggestion will be appropriate for my circumstances. I
have to be willing to listen, research, consult the right professionals, and
exercise patience along the way.
But I don't want to become so accustomed to living with
something that I stop looking for ways to improve it.
Seventeen years is a long time to live with certain
limitations. Yet I still believe there is value in pursuing improvement, even
when the progress is small or the answers take longer than expected.
There is something humbling about realizing how much we can
learn about our own bodies, even after years of living with a particular
condition.
The more I learn about the human body, the more I am
reminded of just how intricately we are created. There are systems working
together every moment of every day that we rarely stop to consider. Even
something as seemingly simple as swallowing involves an extraordinary amount of
coordination between the brain, nerves, muscles, and other structures.
Psalm 139:14 "I will praise thee; for I am
fearfully and wonderfully made: marvellous are thy works; and that my soul
knoweth right well."
I don't understand all the complexities of how my body
works, and I certainly don't understand everything that has happened since my
accident. But I am continually reminded that there is so much more to our
bodies than what we can see or explain.
My faith has been an important part of this journey from the
beginning. It reminds me that I do not have to understand every detail of the
road ahead to keep taking the next step. I can acknowledge what I do not
know without giving up hope, and I can continue seeking answers while trusting
God with the things I cannot control.
Proverbs 3:5–6 "Trust in the LORD with all
thine heart; and lean not unto thine own understanding. In all thy ways
acknowledge him, and he shall direct thy paths."
That passage does not promise that every question will be
answered when we want it answered. Instead, it reminds me where to place my
trust as I continue walking through uncertainty.
I certainly do not have all the answers. I am sharing this
conversation because it gave me a new subject to investigate and a new
possibility to discuss with the professionals involved in my care.
Perhaps the vagus nerve will prove to be an important part
of understanding my situation. Perhaps it will lead to other questions that
help clarify what is happening. Or perhaps the explanation will be something
different altogether.
I do not know yet.
What I do know is that I am still here, still learning, and
still working toward improvement.
I am thankful for every person who has encouraged me, prayed
for me, shared information, or simply taken the time to ask how I am doing.
Your interest and support mean more than you may realize.
The journey is not finished.
And neither am I.














